Saturday, April 24, 2010

$43,000 Raised to Date! - Mailia's Miracle "Night of Hope" a HUGE Success

Jesica Dawsey, Mailia & SteelDust
Max, Mailia and I wish to recognize and thank everyone for coming out last night to Mailia's Miracle "Night of Hope" benefit fundraiser and to also thank all the volunteers, businesses and generous donors who contributed to this event and the live and silent auction.  We were blessed with raising over $11,715.00 last night for Mailia's Adult Stem Cell Therapy.


We wish to convey, that this event was not all about Mailia…but about the sense of generosity, compassion and love that a very special little girl can inspire. By having spent the evening with us, you will be blessed with the knowledge that you have made Mailia…so very happy and that you are a part of an ongoing miracle. To see her smile, to see her so very happy last night...we can only hope you know how much that means to us. Thank you!
We know while Mailia’s personal courage and strength have played a significant part in this ongoing miracle, it is the prayers, encouragement and ongoing support of many folks who have made this possible.

Last night...was no exception.
I wish to explain what may have inspired you to be here. Right after Christmas…I ran in to an old friend at the grocery store, Kolin Dawsey and we got to talking about Mailia. Right away…Kolin said he would like to introduce us to his wife Jesica…and before we knew what hit us…Jesica asked if we would allow her to do a fundraiser to benefit Mailia’s Miracle.

With experience in the fundraising arena…Jesica took the bull by the horns and started down the path to pull together, an incredible team of volunteers and angels. She solicited help from friends Tassie and Tammi. She and her angels asked for donations from individuals and businesses. She brain stormed on a daily basis…some nights, losing sleep worrying about the fundraiser.  But she perservered and came through with a beautiful and successful event.  We commend her highly on her integrity, hard work and dedication...she is a true inspiration that anyone can do great things...if they set their minds and heart to it.  Thank you Jesica...we love you and Kolin dearly!

Jesica also connected with the MissyG Band, John and Missy Guthrie, and they graciously accepted her invitation to play for our benefit and to help Mailia.  Missy to us...sounds like Emy Lou Harris and has such a beautiful voice and her band members are wonderful musicians.  Thank you so much for your beautiful gift to Mailia...we will always cherish your songs.

A good friend of the Missy G band, Kristine Webb who's business is "Clutter and More…was also responsible for helping in a huge way with decorations and finding willing participants.  Kristine will always have a special place in our hearts...thank you!

Kristine then connected us with Profesional Videographers Marti and Mike Greif, from Everlasting Video Memories and asked if they would consider doing a video montage about Mailia’s Miracle and her journey.  This video, which will be found on Mailia's web site...was played for everyone during the benefit dinner.  Mike and Marti…we owe you such a huge debt of gratitude. Your ability to capture this personal glimpse into our lives and that of Mailia’s plight and story is truly appreciated. We thank you so very much!  The video is beautiful and one we will always cherish!

Amy Raye LeMasters…has been an integral part in helping us get the word out about Mailia’s Miracle in the community with public service announcements. To be the Emcee to help with this event…and all the advertising through her radio station 94.9FM The Wolf... and affiliate stations…we wish to recognize and thank her so very much, for affording us the opportunity and for bringing Patricia LaBelle who donated her time proceeds as well.  Thank you sweetie...we love you!

To the owners and staff from Eagle Printing, we owe them so much for their services.  Chris Steel has been around this fundraising block…more times than I can count. But they too…have played such an instrumental part in helping Mailia’s Miracle touch the world. Chris is a wonderful and neat lady…she has a knack of knowing what to say to make your day a whole lot brighter. Her laugh is contagious…her light…is one of the brightest I have seen!  Thank you...so very much!

Web Master extraordinaire…Thomas Granbois…a dear soul who has built Mailia’s Miracle web site and blog…and assisted us from a technical standpoint…to you, we thank you too...you are our angel! Mailia’s web site has been an important conduit to sharing information about Mailia’s condition, her potential therapies and outcomes with thousands of other people around the world looking for answers…and will afford us a means to reach out for help for Mailia…and others.

Mailia’s caregiver Ramona Torres…you know how much we love and value you and your wonderful family. Your taking Mailia’s care so personally…and to heart…treating her as one of your own, means the world to us too. I hope you will always know…how much you truly mean to us and how grateful we are for being a part of Mailia’s life.  Gracias...te quermos muchisimo!

To the staff of the Shilo Inn…, D.J. Dave from Riverside Audio, Auctioneer Doug Swenson and to everyone else, friends, co-workers and family that made time and sacrifices to come meet and support Mailia…thank you so much!

I think in summarizing…Mailia’s spirit reflects she has so much more…to offer this world. Her dad and I have a huge responsibility to her…to see to it that she has the best medical and spiritual assistance to make this life, a reality for her. We don’t have a choice…that is what we are supposed to do. And because of the generosity and support we have from all of you, it will help make it all possible.

We wish for all of you to cherish your loved ones and friends like there was no tomorrow and to live your lives to the fullest by continuing to help one another, and to be true to yourselves.  We will post photos of the event up on Mailia's Miracle Facebook page here shortly.
We love you and humbly thank you.  May God Bless you richly.

Max, Andrea and Mailia



Saturday, April 17, 2010

Tu Decides News and KNDU TV report on Mailia's Miracle - Night of Hope event


We were thrilled and blessed this week to have been given the opportunity to tell Mailia's story and ask the community for their support.

Correspondent Annagrisel Alvarez from the Tri-Cities Tu Decides bi-lingual newspaper did a wonderful article, both in English and in Spanish, about Mailia's Miracle and the upcoming Night of Hope event on Friday April 23rd at the Shilo Inn, as seen in the below post.  Annagrisel's story can be found by clicking on this LINK for the English version or by clicking this LINK for the Spanish version.

Also, Blanca Torres from Tu Decides reported on KNDU news at 6:00 p.m. about Mailia's Miracle, for which we are truly grateful to her and the KNDU staff of reporters, anchors, producers and technical staff at KNDU news station.  Thank you Chris for meeting with us and giving Mailia the "grand tour" which she so enjoyed and Scott, thank you for your awesome report at 11:00 p.m.!  Thank you too Blanca and Annagrisel!  We appreciate it so very much!

Friday, April 16, 2010

Mailia's Miracle - Night of Hope Benefit Fundraiser


























On Friday April 23rd, 2010 there will be a Benefit Dinner, Dance with the MissyG Band, Live and Silent Auction starting at 6: p.m. at the Shilo Inn located in Richland, Wa.  This event is being spearheaded by our dear friend Jesica Dawsey and her wonderful team of Angels/Volunteers who are planning a very festive and fun evening to be enjoyed by all who can attend the Mailia's Miracle - Night of Hope event.  Please contact Jesica (509)542-0791 for tickets and information on how you too, can help be a part of a great cause and miracle. 

We look forward to seeing everyone and thank you in advance, for your support and prayers in helping to be a part of Mailia's Miracle.

All our gratitude and blessings...

Max, Andrea and Mailia

Monday, March 29, 2010

Fox News in Portland Interviews Dr. Julia Robirds for Mailia's Miracle


On Saturday March 27, 2010, KPTV Fox News did a story about Dr. Julia Robirds from Portland, Oregon who we wrote about in our previous blog post.  Reporter Ronna Sweeney and her crew interviewed Dr. Robirds and quickly ran her story...one so compelling and from the heart.

It really shines a beacon of light on our experience and reminds me, one more time, how truly fortunate we are to have people like Dr. Robirds and her incredible staff giving of their tallent, time and resources to help Mailia.





Saturday, March 20, 2010

Portland Oregon Dentist and Staff To Hold Benefit Fundraiser April 17th 2010 for Mailia's Miracle!

                                                                                
                                             

Dr. Julia Anne Robirds D.M.D.
General Practice
13908 SE Stark St Suite D
Portland , OR - 97233
503-408-5778

Hello Andrea, Max and Mailia...this is a picture of my office staff.  They have all agreed that they would like to help with a fundraiser for "Mailia's Miracle".


This was an incerpt from an incredible and gracious letter we received a week ago from Dr. Julia Robirds and her staff....ALL THE WAY FROM PORTLAND OREGON!!!!  We met Julia and her husband Kelly back in January when they came to inquire about a Mini Aussie puppy we had available and that Mailia had been caring for.  Little Cowboy, pictured below...came to us at a time of uncertainty as he was not planned.  But trusting that there would be a higher purpose to his coming into this world at this time, we now know what his gift to us, Julia and Kelly and Mailia...truly is.  A gift of concious healing.


Cowboy has become Kelly's shadow and constant companion and now, the catalyst for something so very big with Dr. Julia Robirds and her wonderful staff offering to work a Saturday (April 17th 2010) with proceeds of that day...to benefit Mailia's Miracle.  They have also been selling "Miracle Money" which are coupons that cost their patients $50 and each coupon has a $100 value and can be used towards cleaning appointments in their office.  And as they state on their flier...This is a great opportunity to save money and help a child in need at the same time!


Our heartfellt thanks go out to Dr. Julia Robirds and her staff, Virginia, Eduardo, Colleen, Amie and Anahi for giving selflessly and graciously to help Mailia. We pray you will be blessed and happy to know, your efforts and caring so that Mailia can get her stem cell therapy and the means to her miracle do mean the world to us and we appreciate it so.  Please give your patients a extra thank you for their support...they too...ROCK!

                                                                                                               

                           

Tuesday, March 9, 2010

Happy Sweet 16 Today Mailia!

On this 9th day of March...you were born into this world and graced our family with such love and happiness. There is not a day that has gone by...that we acknowledge you and are so very grateful to be a part of your incredible life.

Today...we celebrate your special day with seeing a beautiful sunrise and what looks to be a gorgeous sunny day just for you. You have not ventured out of the house since last October...it is time and per your wish today, to head to town...maybe to the mall, to lunch and a movie. To get some fresh air and see things from your perspective...and definitely, count our blessings.

Thank you sweetie...for allowing us to share this precious day with you and we thank God...for the miracle that you are and will always be.

We love you! HAPPY BIRTHDAY Mailia!

Mom and Dad

Sunday, January 31, 2010

EXTRAORDINARY MEASURES - "Don't Hope For A Miracle...Make One"



This past week we went to see the new movie Extraordinary Measures and I sobbed and cried through the entire movie. We thought it was a very powerful story in how they captured the essence of living with a child with disabilities.

Don’t Hope For A Miracle…Make One, is the tagline of CBS films newly released movie Extraordinary Measures, starring Brendan Fraser and Harrison Ford. It is inspired by the story of John Crowley, a father who defied conventional wisdom and great odds and risked his family’s future to pursue a cure for his children’s life threatening disease.

To celebrate the Crowley family’s story, there is a wonderful opportunity to get the word out about a cause that is close to you, and also possibly win some money for them. All you have to do is upload an inspirational video by going to the Inspirational Quilt and click on Upload Your Story. Once the video is uploaded, you will be entered into the sweepstakes for a chance to designate the charity or cause of your choice to receive $10,000! Then share with your friends and contacts to vote to increase your chances of winning.

We hope to get a video compiled soon…on Mailia’s Miracle to add to the Inspirational Quilt.

Anyway...please try to see this...and tell others too as well. Scientists, medical practitioners, parents, students, families and the community must see this exciting movie, not only because the story has proved to save the lives of Pompe-stricken individuals, but the spirit and sunshine it brings to each viewer, because we, as advocates of Mailia's health and healing, and having moved almost heaven and earth to find the cure for Pulmonary Hypertension and congenital heart disease with other parents and adults, we believe this movie lifts viewers to a height that really transcends beyond cinematography and arts. It truly gave us the “Shot in the arm” we really needed now, more than ever!

In gratitude…

The Goforths