Sunday, January 31, 2010
This past week we went to see the new movie Extraordinary Measures and I sobbed and cried through the entire movie. We thought it was a very powerful story in how they captured the essence of living with a child with disabilities.
Don’t Hope For A Miracle…Make One, is the tagline of CBS films newly released movie Extraordinary Measures, starring Brendan Fraser and Harrison Ford. It is inspired by the story of John Crowley, a father who defied conventional wisdom and great odds and risked his family’s future to pursue a cure for his children’s life threatening disease.
To celebrate the Crowley family’s story, there is a wonderful opportunity to get the word out about a cause that is close to you, and also possibly win some money for them. All you have to do is upload an inspirational video by going to the Inspirational Quilt and click on Upload Your Story. Once the video is uploaded, you will be entered into the sweepstakes for a chance to designate the charity or cause of your choice to receive $10,000! Then share with your friends and contacts to vote to increase your chances of winning.
We hope to get a video compiled soon…on Mailia’s Miracle to add to the Inspirational Quilt.
Anyway...please try to see this...and tell others too as well. Scientists, medical practitioners, parents, students, families and the community must see this exciting movie, not only because the story has proved to save the lives of Pompe-stricken individuals, but the spirit and sunshine it brings to each viewer, because we, as advocates of Mailia's health and healing, and having moved almost heaven and earth to find the cure for Pulmonary Hypertension and congenital heart disease with other parents and adults, we believe this movie lifts viewers to a height that really transcends beyond cinematography and arts. It truly gave us the “Shot in the arm” we really needed now, more than ever!